"This year's STRIVE for DMD winners all submitted innovative, creative and passionate project proposals that aspire to enhancing the experiences of the Duchenne community. We are pleased to be able to provide these organizations with support to bring these brilliant projects to life," said
The impact of the STRIVE Awards will be felt across three different continents, with awards granted to patient organizations in
Award entries were submitted by 32 organizations from around the world. Each of the winning organizations will receive a grant to make their proposed project a reality. An independent panel of external experts with knowledge in rare diseases, patient advocacy and funding initiatives judged entries for innovation, vision and empowerment.
The judges were impressed by the high standard of submissions. "There were some very inventive and collaborative proposals this year. These awards have provided a meaningful way for organizations throughout the world to implement innovative programs," said
"The enthusiasm and commitment of the non-profit organizations who entered the STRIVE for DMD 2017 awards was astounding," said
DMD is a rare genetic disorder that results in progressive muscle weakness from early childhood, with subsequent loss of lower and then upper body function. Most children with DMD are wheelchair-bound by their early teens. PTC established the STRIVE awards program to support initiatives that will benefit the DMD community by increasing awareness, diagnosis and education, and fostering the development of future patient advocates.
About STRIVE Awards Program
PTC began the STRIVE Awards program for DMD in 2015. For further information about the program and each award recipient, please visit the STRIVE website: www.ptcbio.com/en/about-ptc/ptc-strive-awards-program/.
About Duchenne Muscular Dystrophy
Primarily affecting males, Duchenne muscular dystrophy (DMD) is a rare and fatal genetic disorder that results in progressive muscle weakness from early childhood and leads to premature death in the mid-twenties due to heart and respiratory failure. It is a progressive muscle disorder caused by the lack of functional dystrophin protein. Dystrophin is critical to the structural stability of skeletal, diaphragm, and heart muscles. Patients with DMD can lose the ability to walk as early as age ten, followed by loss of the use of their arms. DMD patients subsequently experience life-threatening lung complications, requiring the need for ventilation support, and heart complications in their late teens and twenties. It is estimated that a nonsense mutation is the cause of DMD in approximately 13 percent of patients.
PTC is a global biopharmaceutical company focused on the discovery, development, and commercialization of novel medicines using our expertise in RNA biology. PTC's internally discovered pipeline addresses multiple therapeutic areas, including rare disorders and oncology. PTC has discovered all of its compounds currently under development using its proprietary technologies. Since its founding nearly 20 years ago, PTC's mission has focused on developing treatments to fundamentally change the lives of patients living with rare genetic disorders. The company was founded in 1998 and is headquartered in South
In addition, PTC has launched its global disease awareness website, DuchenneAndYou.com to engage the broader DMD community and provide valuable information regarding the disease state.
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